Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025
This bill increases funding and expands the scope of federal efforts to address sickle cell disease. It boosts annual funding for research and treatment programs from $4.455 million (2019-2023) to $8.205 million (2025-2029) and updates language to specifically include "prevention and treatment of complications" alongside disease treatment. The bill also modifies grant procedures to allow more flexible funding mechanisms for organizations working on sickle cell disease and related heritable blood disorders. It directly affects federal health agencies, researchers, and healthcare providers serving patients with sickle cell disease, focusing on concrete policy changes in funding and program scope.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
President
Introduced Feb 26, 2025
Last action Feb 26, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
Feb 26, 2025
Committee
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
upper
Feb 26, 2025
Introduced
Introduced in Senate
upper
1 primary · 3 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Tim Scott
RRepublican
Co
Cory A. Booker
DDemocratic
Co
Jon Ossoff
DDemocratic
Co
Raphael G. Warnock
DDemocratic
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