ALS Better Care Act

The ALS Better Care Act amends Medicare to cover a specific set of ALS-related services - including specialized physician support, therapy, equipment coordination, and respiratory care - for patients diagnosed with ALS, starting January 1, 2027. Medicare will pay providers a single, annual amount per patient visit (beginning at $800 in 2027), adjusted yearly based on cost increases or recommendations from the Comptroller General. The bill also requires a report on challenges in funding and staffing ALS clinical trials to improve research progress. This addresses current low Medicare reimbursements that have caused long wait times and limited care access for ALS patients.