Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".
This resolution expresses the U.S. House of Representatives' support for designating May 2, 2025, as "NKH Awareness Day" to raise public and medical community awareness of nonketotic hyperglycinemia (NKH), a rare genetic metabolic disorder affecting approximately 1 in 76,000 people worldwide. It directly supports the small community of NKH patients and their families, including the estimated 4 individuals diagnosed in Virginia, by highlighting the need for greater education and research. The resolution does not create new programs or funding but serves as a symbolic gesture to encourage increased attention to NKH diagnosis, research, and patient registry participation.
Bill status
in committee
1 of 4 stages cleared
Introduction
May 2025
Committee Review
Floor Vote
President
Introduced May 5, 2025
Last action May 5, 2025
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No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
May 5, 2025
Committee
Referred to the House Committee on Energy and Commerce.
lower
1 primary · 1 co-sponsor
Sponsors
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