Expressing support for a "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
This resolution expresses support for World Sickle Cell Awareness Day to raise public awareness about sickle cell disease and the ongoing need for research, early screening, and effective treatments. It highlights the importance of equitable access to new therapies, such as gene editing and stem cell transplants, and calls on federal agencies to remove barriers preventing vulnerable patients from receiving these innovative cures. The bill also urges the creation of an interagency group to coordinate policies that address healthcare disparities and improve outcomes for individuals affected by sickle cell disease globally.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jun 2026
Committee Review
Floor Vote
President
Introduced Jun 18, 2026
Last action Jun 18, 2026
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Full legislative history
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2
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Committee
1
Jun 18, 2026
Committee
Referred to the House Committee on Energy and Commerce.
lower
Jun 18, 2026
Introduced
Submitted in House
lower
1 primary · 1 co-sponsor
Sponsors
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