Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.
This resolution designates November 7 of each year as Shwachman Diamond Syndrome Awareness Day to increase public understanding of this rare genetic disorder. The bill aims to highlight the condition's impact on bone marrow, pancreas, and skeletal health, while promoting research and support for the approximately 2,000 Americans living with the disease. It does not change laws or funding but serves as a symbolic designation to encourage awareness and multidisciplinary care for affected individuals.
Bill status
in committee
1 of 4 stages cleared
Introduction
Mar 2026
Committee Review
Floor Vote
President
Introduced Mar 24, 2026
Last action Mar 24, 2026
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
Mar 24, 2026
Committee
Referred to the House Committee on Energy and Commerce.
lower
1 primary · 1 co-sponsor
Sponsors
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