HRES 1060 United States House · 119th Congress

Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".

HRES 1060 is a symbolic resolution designating April 5, 2026, as "Barth Syndrome Awareness Day" in the U.S. House of Representatives. It directly supports individuals and families affected by Barth syndrome, a rare genetic disorder primarily impacting males that causes heart, muscle, and immune system issues. The resolution expresses support for raising public awareness, improving early diagnosis, advancing research, and developing treatments for this condition - though it does not create new funding or policy changes. It serves as a non-binding statement of recognition by Congress, acknowledging the challenges faced by the small patient community (fewer than 160 diagnosed in the U.S.) and the need for greater attention to this ultrarare disease.
Bill status in committee 1 of 4 stages cleared
Introduction
Feb 2026
Committee Review
Floor Vote
President
Introduced Feb 11, 2026 Last action Feb 11, 2026
Floor votes

How they voted

No floor votes recorded yet.
Full legislative history

Actions timeline

Total actions
2
Key actions
0
Committee
1
Feb 11, 2026
Committee
Referred to the House Committee on Energy and Commerce.
lower
1 primary · 11 co-sponsors

Sponsors