Candis King Hope for Sickle Cell Families Act

The Candis King Hope for Sickle Cell Families Act establishes a new data collection program to track the incidence, prevalence, and healthcare patterns of sickle cell disease across the United States. Funded through $10 million in annual grants from 2027 to 2031, the program directs the Centers for Disease Control and Prevention to award funding to states for gathering demographic and clinical information about sickle cell disease patients. The legislation also reinstates specific employees from the CDC's Division of Blood Disorders and Public Health Genomics who were removed in agency actions affecting 3 percent or more of the division's workforce within a 60-day period starting January 1, 2025.