Newborn Screening Saves Lives Reauthorization Act of 2025

This bill reauthorizes and updates federal programs for newborn screening, primarily affecting infants, children with genetic conditions, and their families. It increases annual funding for screening programs to $20.8 million (2026-2030) and research to $22.25 million, requiring states to develop parent education materials on screening follow-up and treatment. Key provisions include creating a public clearinghouse for screening data, improving coordination between state health programs, and mandating that research on genetic testing must consult with state health departments. The bill also updates deadlines for advisory committee work and technical assistance for screening panels through 2030.