Sickle Cell Disease Comprehensive Care Act

The Sickle Cell Disease Comprehensive Care Act establishes a 5-year Medicaid demonstration project to improve outpatient care for people with sickle cell disease, with a focus on young adults and pregnant women. It authorizes $25 million for planning grants to at least 10 states and up to $50 million for implementation, providing participating states with 100% federal funding for sickle cell disease treatment costs. Key provisions include creating multi-disciplinary care teams, addressing barriers to care through assessments, developing individualized care plans, and expanding access to specialized services including pain management, mental health, and specialist care. States must report on outcomes including reduced emergency department visits, hospital stays, and overall cost savings compared to pre-project levels.