S 5353 United States Senate · 118th Congress

National Plan for Epilepsy Act

This bill establishes a National Plan for Epilepsy under the Public Health Service Act, requiring the Secretary of Health and Human Services to create an integrated strategy for preventing, diagnosing, treating, and curing epilepsy. It mandates an annual assessment of progress, an Advisory Council with diverse representation (including people living with epilepsy, caregivers, healthcare providers, and researchers), and annual reports to Congress on federal efforts. The plan directly affects the nearly 3.5 million people in the U.S. living with epilepsy and their caregivers by aiming to improve care coordination, reduce uncontrolled seizures, address financial burdens, and advance research. Key mechanisms include coordinating across federal agencies (like NIH and CDC), requiring public input, and setting a 2035 sunset date for the program.
Bill status in committee 1 of 4 stages cleared
Introduction
Nov 2024
Committee Review
Floor Vote
President
Introduced Nov 20, 2024 Last action Nov 20, 2024
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2
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0
Committee
1
Nov 20, 2024
Committee
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
upper
Nov 20, 2024
Introduced
Introduced in Senate
upper
1 primary · 2 co-sponsors

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