Sickle Cell Disease Treatment Centers Act of 2024

The Sickle Cell Disease Treatment Centers Act of 2024 creates a federal grant program to establish treatment centers using a "hub-and-spoke" model, directly benefiting people with sickle cell disease and related blood disorders. These centers will coordinate comprehensive care - such as pain management, genetic counseling, mental health services, and pediatric-to-adult health transitions - through partnerships between medical hubs (like hospitals or clinics), community spokes (e.g., health centers or primary care providers), and community-based organizations. The program requires grantees to address social determinants of health (like housing and transportation access), collect patient outcome data, and prioritize underserved communities with high sickle cell disease prevalence, including rural areas and historically Black colleges. A National Sickle Cell Disease Coordinating Center will oversee implementation and report to Congress every five years on the program’s impact on patient health outcomes.