Genomics Data Security Act

The Genomics Data Security Act (S 289) restricts U.S. National Institutes of Health (NIH) funding for genomic research involving entities with significant ties to the Chinese government or companies under Chinese control. It requires NIH grant recipients to annually report undisclosed foreign government connections, particularly regarding Chinese entities, and mandates that labs handling human genomic data disclose any Chinese ownership or control in their licensure applications. The bill also establishes a working group within Health and Human Services to update NIH data-sharing policies, develop national security guidelines for genomic data, and address risks in international research partnerships. These changes directly affect NIH-funded researchers, genomic testing labs, and private companies conducting biomedical research involving U.S. health data.