Expressing support for the designation of June 19, 2023, as "World Sickle Cell Awareness Day" in order to increase public alertness across the United States and global community about sickle cell disease, the continued need for empirical research, early detection screenings for sickle cell trait carriers, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions related to sickle cell disease.
HRES 514 is a non-binding House resolution designating June 19, 2023, as "World Sickle Cell Awareness Day" to raise public awareness about sickle cell disease (SCD). It directly affects individuals living with SCD, their families, and global health systems by urging increased focus on research, early screening for sickle cell trait, and equitable access to treatments. The resolution includes six key recommendations: supporting newborn screening, eliminating barriers to innovative therapies in Medicare/Medicaid, encouraging public events, and calling for a White House-led interagency cabinet to address SCD care gaps. It does not create new laws or allocate funds but aims to mobilize existing efforts and highlight SCD as a global health priority.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jun 2023
Committee Review
Floor Vote
President
Introduced Jun 15, 2023
Last action Jun 16, 2023
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Full legislative history
Actions timeline
Total actions
3
Key actions
0
Committee
2
Jun 16, 2023
Committee
Referred to the Subcommittee on Health.
lower
Jun 15, 2023
Committee
Referred to the House Committee on Energy and Commerce.
lower
Jun 15, 2023
Introduced
Introduced in House
lower
1 primary · 4 co-sponsors
Sponsors
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