HRES 485 United States House · 118th Congress

Expressing support for the designation of "Batten Disease Awareness Day" on June 9.

HRES 485 is a non-binding resolution expressing the U.S. House of Representatives' support for designating June 9 as "Batten Disease Awareness Day." It does not create new laws or policies, but formally recognizes Batten disease - a rare, fatal neurological disorder affecting children - as a condition requiring public awareness. The resolution describes Batten disease as a genetic condition causing progressive vision loss, seizures, motor skill decline, and early death, with no known cure. It directly affects families and advocacy groups for this rare disease by promoting public recognition on a specific date. This is a symbolic gesture with no direct impact on healthcare, funding, or regulations.
Bill status in committee 1 of 4 stages cleared
Introduction
Jun 2023
Committee Review
Floor Vote
President
Introduced Jun 9, 2023 Last action Jun 9, 2023
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2
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Committee
1
Jun 9, 2023
Committee
Referred to the House Committee on Oversight and Accountability.
lower
Jun 9, 2023
Introduced
Introduced in House
lower
1 primary · 11 co-sponsors

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