Expressing support for the designation of "Batten Disease Awareness Day" on June 9.
HRES 485 is a non-binding resolution expressing the U.S. House of Representatives' support for designating June 9 as "Batten Disease Awareness Day." It does not create new laws or policies, but formally recognizes Batten disease - a rare, fatal neurological disorder affecting children - as a condition requiring public awareness. The resolution describes Batten disease as a genetic condition causing progressive vision loss, seizures, motor skill decline, and early death, with no known cure. It directly affects families and advocacy groups for this rare disease by promoting public recognition on a specific date. This is a symbolic gesture with no direct impact on healthcare, funding, or regulations.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jun 2023
Committee Review
Floor Vote
President
Introduced Jun 9, 2023
Last action Jun 9, 2023
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
Jun 9, 2023
Committee
Referred to the House Committee on Oversight and Accountability.
lower
Jun 9, 2023
Introduced
Introduced in House
lower
1 primary · 11 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Aaron Bean
RRepublican
Co
Barry Moore
RRepublican
Co
Bill Posey
RRepublican
Co
Don Bacon
RRepublican
Co
Donald M. Payne, Jr.
DDemocratic
Co
Jenniffer González-Colón
RRepublican
Co
John H. Rutherford
RRepublican
Co
Katie Porter
DDemocratic
Co
Mike Rogers
RRepublican
Co
Nancy Mace
RRepublican
Co
Paul Tonko
DDemocratic
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