Expressing support for the designation of April 5, 2023, as "Barth Syndrome Awareness Day".
This resolution expresses congressional support for designating April 5, 2023, as "Barth Syndrome Awareness Day" in the United States. It does not create new laws, allocate funding, or change policies - it solely recognizes the importance of raising public awareness about Barth syndrome, a rare genetic disorder affecting primarily males. The resolution highlights the condition's severity (with high infant mortality and limited treatment options) and emphasizes the need for improved diagnosis, research, and patient support. It directly affects individuals with Barth syndrome, their families, and advocacy groups like the Barth Syndrome Foundation, which organizes this awareness day. The resolution serves as a symbolic gesture to promote understanding of this ultrarare condition.
Bill status
in committee
1 of 4 stages cleared
Introduction
Apr 2023
Committee Review
Floor Vote
President
Introduced Apr 3, 2023
Last action Apr 14, 2023
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
0
Committee
2
Apr 14, 2023
Committee
Referred to the Subcommittee on Health.
lower
Apr 3, 2023
Committee
Referred to the House Committee on Energy and Commerce.
lower
Apr 3, 2023
Introduced
Introduced in House
lower
1 primary · 6 co-sponsors
Sponsors
Ask Maddy
·
AI policy assistant
Ask Maddy about HRES 276
Scope: US
Hi! I can help you understand HRES 276. What would you like to know?
Try one of these
i
Maddy answers using official bill text and legislative records. Always verify before sharing.
Sources cited inline