HRES 276 United States House · 118th Congress

Expressing support for the designation of April 5, 2023, as "Barth Syndrome Awareness Day".

This resolution expresses congressional support for designating April 5, 2023, as "Barth Syndrome Awareness Day" in the United States. It does not create new laws, allocate funding, or change policies - it solely recognizes the importance of raising public awareness about Barth syndrome, a rare genetic disorder affecting primarily males. The resolution highlights the condition's severity (with high infant mortality and limited treatment options) and emphasizes the need for improved diagnosis, research, and patient support. It directly affects individuals with Barth syndrome, their families, and advocacy groups like the Barth Syndrome Foundation, which organizes this awareness day. The resolution serves as a symbolic gesture to promote understanding of this ultrarare condition.
Bill status in committee 1 of 4 stages cleared
Introduction
Apr 2023
Committee Review
Floor Vote
President
Introduced Apr 3, 2023 Last action Apr 14, 2023
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Full legislative history

Actions timeline

Total actions
3
Key actions
0
Committee
2
Apr 14, 2023
Committee
Referred to the Subcommittee on Health.
lower
Apr 3, 2023
Committee
Referred to the House Committee on Energy and Commerce.
lower
Apr 3, 2023
Introduced
Introduced in House
lower
1 primary · 6 co-sponsors

Sponsors