Expressing support for the designation of June 20, 2024, as "World FSHD Day".
HRES 1307 is a non-binding House resolution designating June 20, 2024, as "World FSHD Day" to raise awareness about facioscapulohumeral muscular dystrophy (FSHD), a rare genetic muscle disease affecting approximately 41,487 Americans. The resolution supports efforts to improve public education about FSHD, encourage early genetic diagnosis, and advance research for treatments and cures. It directly affects FSHD patients, caregivers, and advocacy groups like the FSHD Society, which aims to develop treatments by 2025. The resolution expresses symbolic support for ongoing advocacy but does not create new laws or allocate funding.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jun 2024
Committee Review
Floor Vote
President
Introduced Jun 18, 2024
Last action Jun 18, 2024
Floor votes
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Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
Jun 18, 2024
Committee
Referred to the House Committee on Energy and Commerce.
lower
Jun 18, 2024
Introduced
Introduced in House
lower
1 primary · 3 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Debbie Dingell
DDemocratic
Co
Juan Ciscomani
RRepublican
Co
Mike Kelly
RRepublican
Co
Robert Menendez
DDemocratic
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