HRES 1304 United States House · 118th Congress

Expressing support for the designation of June 19, 2024, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

HRES 1304 is a symbolic resolution designating June 19, 2024, as "World Sickle Cell Awareness Day" to raise public awareness about sickle cell disease (SCD) globally. It does not create new laws but urges increased focus on SCD research, early detection screenings, equitable access to treatments, and preventative care programs for those affected. The resolution specifically calls on the Department of Health and Human Services to develop global policies supporting newborn screening and treatment access, and recommends forming an interagency group to address barriers in Medicare/Medicaid for SCD therapies. It directly affects public awareness efforts and healthcare policy discussions for the estimated 100,000 SCD patients in the U.S. and millions worldwide, particularly in communities disproportionately impacted by the disease.
Bill status in committee 1 of 4 stages cleared
Introduction
Jun 2024
Committee Review
Floor Vote
President
Introduced Jun 18, 2024 Last action Jun 18, 2024