Expressing support for the designation of June 19, 2024, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
HRES 1304 is a symbolic resolution designating June 19, 2024, as "World Sickle Cell Awareness Day" to raise public awareness about sickle cell disease (SCD) globally. It does not create new laws but urges increased focus on SCD research, early detection screenings, equitable access to treatments, and preventative care programs for those affected. The resolution specifically calls on the Department of Health and Human Services to develop global policies supporting newborn screening and treatment access, and recommends forming an interagency group to address barriers in Medicare/Medicaid for SCD therapies. It directly affects public awareness efforts and healthcare policy discussions for the estimated 100,000 SCD patients in the U.S. and millions worldwide, particularly in communities disproportionately impacted by the disease.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jun 2024
Committee Review
Floor Vote
President
Introduced Jun 18, 2024
Last action Jun 18, 2024
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Full legislative history
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Total actions
2
Key actions
0
Committee
1
Jun 18, 2024
Committee
Referred to the House Committee on Energy and Commerce.
lower
Jun 18, 2024
Introduced
Introduced in House
lower
1 primary · 23 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Danny K. Davis
DDemocratic
Co
Alma S. Adams
DDemocratic
Co
André Carson
DDemocratic
Co
Barbara Lee
DDemocratic
Co
Bill Pascrell, Jr.
DDemocratic
Co
Delia C. Ramirez
DDemocratic
Co
Donald G. Davis
DDemocratic
Co
Earl Blumenauer
DDemocratic
Co
Earl L. "Buddy" Carter
RRepublican
Co
Eleanor Holmes Norton
DDemocratic
Co
Frederica S. Wilson
DDemocratic
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