Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day".

This non-binding resolution designates April 5, 2024, as "Barth Syndrome Awareness Day" to raise public awareness about a rare genetic disorder primarily affecting males. It formally supports efforts to improve diagnosis, advance research, and develop treatments for Barth syndrome, which has fewer than 150 diagnosed cases in the U.S. and causes life-threatening heart, muscle, and immune complications. The resolution does not create new laws or funding but recognizes the need for better access to specialized care and regulatory pathways for ultrarare diseases. This symbolic action aims to benefit the small patient community and support the Barth Syndrome Foundation's awareness initiatives.