Sickle Cell Disease Treatment Centers Act of 2024

HR 9872, the Sickle Cell Disease Treatment Centers Act of 2024, establishes a federal grant program to create coordinated care networks for sickle cell disease patients. It funds "hub-and-spoke" systems where medical hubs (like hospitals or universities) partner with local spokes (clinics, health centers) and community organizations to provide comprehensive, lifelong care - including pain management, genetic counseling, mental health services, and pediatric-to-adult transition support. The program specifically prioritizes underserved communities, historically Black colleges, rural areas, and regions with high sickle cell disease prevalence, while requiring data collection on patient outcomes and health disparities. Grants allocate 70% to hub-spoke networks, 20% to community organizations, and 5% each to the National Sickle Cell Coordinating Center and CDC data collection efforts.