Sickle Cell Disease Comprehensive Care Act

HR 1672 establishes a 5-year Medicaid demonstration project to improve outpatient care for individuals with sickle cell disease enrolled in state Medicaid programs. The bill requires states to create multidisciplinary care teams, assess barriers to care (including social and geographic factors), develop patient-centered care plans, and expand access to specialized services like pain management, mental health support, and disease-modifying treatments. States selected for the project receive 100% federal Medicaid funding for sickle cell disease treatment during the demonstration period, with a focus on young adults and pregnant women. The initiative directly affects Medicaid beneficiaries with sickle cell disease and aims to reduce long-term costs by improving care coordination and access to comprehensive services.