SF 1069 Minnesota Senate · 2025-2026 Regular Session

Membership of the Rare Disease Advisory Council modification

SF 1069 modifies the membership structure of Minnesota's Rare Disease Advisory Council. It adds specific new categories, including requiring at least one council member with a rare disease or as a caregiver to reside in rural Minnesota, and creates formal legislative representation (two senators and two House members appointed by leadership). The bill also establishes clear roles for ex officio members (health commissioner, Mayo Medical School, University of Minnesota Medical School) and allows for temporary "ad hoc" members with expertise for specific projects. These changes clarify who serves on the council but do not alter the council's purpose or direct healthcare policies. The bill affects the council's composition, not the delivery of rare disease care.
Bill status in committee 1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
Governor
Introduced Feb 6, 2025 Last action Feb 6, 2025
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Full legislative history

Actions timeline

Total actions
2
Key actions
0
Committee
1
Feb 6, 2025
Committee
Referred to Health and Human Services
upper
Feb 6, 2025
Introduced
Introduction and first reading
upper
1 primary · 0 co-sponsors

Sponsors

Role
Legislator
Party
State
District
P
Photo of Jim Carlson
Jim Carlson
DDemocratic-Farmer-Labor
MN
52