Neurodegenerative disease registry program.
Summary
Existing law, until January 1, 2028, and to the extent funds are made available for these purposes, requires the State Department of Public Health to establish a system for the collection of information determining the incidence and prevalence of neurodegenerative diseases, including, but not limited to, amyotrophic lateral sclerosis (ALS) , also known as Lou Gehrig's disease. Existing law requires a hospital, facility, physician and surgeon, or other health care provider diagnosing or providing treatment to a patient for a neurodegenerative disease to report each case of a neurodegenerative disease to the department, as prescribed. Existing law requires the department to designate the specified neurodegenerative diseases required to be reported in the state or any part of the state. Existing law specifies that for this purpose, "neurodegenerative disease" may include, but need not be limited to, Alzheimer's disease, multiple sclerosis, and Huntington's disease. This bill would require the department to establish a system for the collection of information determining the incidence and prevalence of frontotemporal degeneration (FTD) . This bill would specify that "neurodegenerative disease" may also include other dementias. The bill would extend the requirements of these provisions until January 1, 2032.
Bill status
passed both
4 of 5 stages cleared
Introduction
Feb 2026
Committee Review
Aug 2026
Senate Passage
May 2026
Assembly Passage
Aug 2026
Governor
Introduced Feb 12, 2026
Last action Aug 27, 2026
Maddy AI version diff · 5 comparisons
What changed between versions
08/30/26 - Enrolled
→
SB1047
·
1 edit
MINOR
No substantive policy changes occurred between these two versions. The diff reflects a reformatting of the same enrolled bill text from the official legislative document (with signature blocks, page numbers, and formal headers) into a web-based republication format that includes navigation elements, metadata, and bill status information. The actual statutory language of Sections 103871 and 103871.2 is identical in both versions.
TECHNICAL
The bill text was republished in a web-based format replacing the formal enrolled document layout (with page numbers, signature blocks, and 'Secretary of the Senate' / 'Chief Clerk of the Assembly' lines) with a website structure including navigation menus, search tools, version history, and status tracking. The underlying statutory language is unchanged.
Floor votes · Senate May 28, 2026 · Assembly Aug 24, 2026
How they voted
39–0
Passed · 1 other
Total votes 40
May 28, 2026
D
Democratic30
100% Yea
R
Republican10
90% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
27
Key actions
10
Committee
4
Amendments
7
Aug 27, 2026
Upper · Passed
Assembly amendments concurred in. (Ayes 39. Noes 0.) Ordered to engrossing and enrolling.
upper
Aug 24, 2026
Introduced
In Senate. Concurrence in Assembly amendments pending.
upper
Aug 24, 2026
Lower · Passed
Read third time. Passed. Ordered to the Senate.
lower
Aug 19, 2026
Lower · Passed
Read third time and amended.
lower
Aug 13, 2026
Lower · Passed
From committee: Do pass. (Ayes 15. Noes 0.) (August 13).
lower
Jun 17, 2026
Lower · Passed
From committee: Do pass and re-refer to Com. on APPR. with recommendation: To consent calendar. (Ayes 15. Noes 0.) (June 16). Re-referred to Com. on APPR.
lower
Jun 4, 2026
Committee
Referred to Com. on HEALTH.
lower
May 28, 2026
Upper · Passed
Read third time. Passed. (Ayes 39. Noes 0. Page 4525.) Ordered to the Assembly.
upper
May 14, 2026
Upper · Passed
Read second time and amended. Ordered to second reading.
upper
May 14, 2026
Upper · Passed
From committee: Do pass as amended. (Ayes 7. Noes 0. Page 4262.) (May 14).
upper
Apr 6, 2026
Upper · Passed
Read second time and amended. Re-referred to Com. on APPR.
upper
Mar 26, 2026
Upper · Passed
From committee: Do pass as amended and re-refer to Com. on APPR. with recommendation: To consent calendar. (Ayes 11. Noes 0. Page 3690.) (March 25).
upper
Feb 26, 2026
Committee
Referred to Com. on HEALTH.
upper
Feb 12, 2026
Introduced
Introduced. Read first time. To Com. on RLS. for assignment. To print.
upper
1 primary · 8 co-sponsors
Sponsors
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