Medical care: genetically handicapping conditions.

Existing law, the Holden-Moscone-Garamendi Genetically Handicapped Persons Program (GHPP) , requires the Director of Health Care Services to establish and administer a program for the medical care of persons with specified genetically handicapping conditions and for persons with specified hereditary metabolic disorders. Existing law, the federal Patient Protection and Affordable Care Act (PPACA) , among other provisions, reformed certain aspects of the private health insurance industry and public health insurance programs. This bill would require the State Department of Health Care Services to prepare a report on the coverage needs of the population served by the GHPP after the implementation of the PPACA. This bill would require the report to address, among other things, preservation of the availability of wrap-around services that would otherwise not be available through the PPACA and the extent to which a person with genetic amyotrophic lateral sclerosis will continue to have unmet medical needs after implementation of the PPACA. This bill would require the department to submit the report to the relevant fiscal and policy committees of the Legislature by January 1, 2015.