HB 5581 West Virginia House of Delegates · 2026 Regular Session

Relating to newborn screening (Dawson’s Law)

HB 5581 (Dawson’s Law) adds infantile GM1 gangliosidosis - a rare genetic disorder affecting infants - to the list of conditions required for newborn screening in West Virginia. The bill mandates hospitals to test all newborns for this condition, alongside existing screenings for diseases like phenylketonuria and cystic fibrosis. These screenings will be covered as a standard benefit by Medicaid, state insurance programs, and private insurers offering pregnancy coverage. The law directly affects all newborns in West Virginia by expanding early detection for this specific condition.
Bill status in committee 1 of 4 stages cleared
Introduction
Feb 2026
Committee Review
Floor Vote
Governor
Introduced Feb 16, 2026 Last action Feb 16, 2026
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Full legislative history

Actions timeline

Total actions
4
Key actions
0
Committee
2
Feb 16, 2026
Committee
To House Health and Human Resources
lower
Feb 16, 2026
Introduced
Introduced in House
lower
Feb 16, 2026
Committee
To Health and Human Resources
lower
1 primary · 0 co-sponsors

Sponsors

Role
Legislator
Party
State
District
P
Photo of Kathie Hess Crouse
Kathie Hess Crouse
RRepublican
WV
19