To Protect Newborn Genetic Privacy Rights

HB 5547 requires healthcare providers to obtain specific written consent from parents before conducting newborn genetic screening, which cannot be fulfilled by general consent forms signed at hospital admission. It limits blood collection to only what's necessary for screening and mandates destruction of blood samples after three weeks unless parents give additional written consent for retention. The bill also prohibits using newborn blood samples for research, law enforcement, or other purposes without separate consent from parents or the adult who was a minor when the sample was taken. Healthcare facilities must provide written information about screening options and the right to opt out during pregnancy.