Genetic Privacy Act

HB 3436, the Genetic Privacy Act, would require companies and organizations collecting genetic data in West Virginia to obtain clear, specific consumer consent before using or sharing that information. It defines "genetic data" broadly to include DNA sequences, health-related information connected to genetic testing, and related analyses. The bill mandates that entities provide privacy notices about data collection, use, and disclosure, and allows consumers to access or delete their data. It includes exceptions for healthcare providers under HIPAA, research with proper consent, and government use (with new warrant requirements starting in 2027), directly affecting genetic testing companies and any business handling consumer genetic information in the state.