H 293: An act relating to miscellaneous amendments to the Department of Health’s reporting and programming requirements
H 293 changes Vermont's health equity reporting requirements by reducing the frequency of Department of Health reports from annual to every three years starting in 2028. It also updates disclosure rules for cancer and amyotrophic lateral sclerosis (ALS) registries, requiring written confidentiality agreements before sharing identifiable health data with researchers or other registries. The bill ensures that any shared data must be minimized to what's necessary for research, while maintaining privacy protections under state and federal law. These changes take effect July 1, 2025, and directly affect the Department of Health, healthcare researchers, and state registries managing cancer and ALS patient data.


