An act relating to protecting genetic information privacy and consumer health information
This bill establishes the Genetic Information Privacy Act to protect consumers' genetic data and biological samples collected by direct-to-consumer genetic testing companies. It requires these companies to obtain clear, separate consent for each specific use of genetic information, including sharing data for research, marketing, or transferring to third parties. The law also mandates strong security measures, gives consumers the right to access or delete their data and biological samples, and prohibits companies from sharing genetic information with health insurers, life insurers, or employers without written consent. Companies violating these rules would face penalties under Vermont's unfair and deceptive trade practices law, while data already covered by federal health privacy regulations remains unaffected.
Bill status
introduced
1 of 4 stages cleared
Introduction
Jan 2023
Committee Review
Floor Vote
Governor
Introduced Jan 31, 2023
Last action Jan 31, 2023
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
1
Key actions
0
Committee
0
Jan 31, 2023
Introduced
Read 1st time & referred to Committee on Economic Development, Housing and General Affairs
upper
1 primary · 6 co-sponsors
Sponsors
Ask Maddy
·
AI policy assistant
Ask Maddy about S 49
Scope: VT
Hi! I can help you understand S 49. What would you like to know?
Try one of these
i
Maddy answers using official bill text and legislative records. Always verify before sharing.
Sources cited inline