S 49 Vermont Senate · 2023-2024 Regular Session

An act relating to protecting genetic information privacy and consumer health information

This bill establishes the Genetic Information Privacy Act to protect consumers' genetic data and biological samples collected by direct-to-consumer genetic testing companies. It requires these companies to obtain clear, separate consent for each specific use of genetic information, including sharing data for research, marketing, or transferring to third parties. The law also mandates strong security measures, gives consumers the right to access or delete their data and biological samples, and prohibits companies from sharing genetic information with health insurers, life insurers, or employers without written consent. Companies violating these rules would face penalties under Vermont's unfair and deceptive trade practices law, while data already covered by federal health privacy regulations remains unaffected.
Bill status introduced 1 of 4 stages cleared
Introduction
Jan 2023
Committee Review
Floor Vote
Governor
Introduced Jan 31, 2023 Last action Jan 31, 2023
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Jan 31, 2023
Introduced
Read 1st time & referred to Committee on Economic Development, Housing and General Affairs
upper
1 primary · 6 co-sponsors

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