Relating to the establishment of the sickle cell disease registry.
HB 1884 establishes a statewide sickle cell disease registry in Texas to collect and analyze patient data for improved treatment and research. It requires hospitals and other treatment facilities to submit case data to the Texas Department of Health, which must maintain a centralized, confidential record of all sickle cell disease cases in the state. The registry will include patient records and other relevant information, with strict confidentiality protections aligned with HIPAA and state health privacy laws. The department must publish annual reports on the data to the legislature and share findings with medical professionals and the public to support better care. This bill directly affects health care facilities that treat sickle cell disease patients and aims to enhance treatment strategies through data-driven insights.
Bill status
in committee
1 of 4 stages cleared
Introduction
Mar 2025
Committee Review
Floor Vote
Governor
Introduced Mar 14, 2025
Last action Mar 14, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
0
Committee
1
Mar 14, 2025
Committee
Referred to s/c on Dis Prev & Women's & Children's Health by Speaker
lower
Mar 14, 2025
Introduced
Read first time
lower
5 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Lauren Simmons
DDemocratic
P
Nicole Collier
DDemocratic
P
Tom Oliverson
RRepublican
P
Toni Rose
DDemocratic
P
Venton Jones
DDemocratic
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