HB 107 Texas House · 89th Legislature (2025)

Relating to the establishment of the sickle cell disease registry.

HB 107 establishes a statewide sickle cell disease registry under Texas Health and Safety Code Chapter 52B. It requires hospitals and other treatment facilities to submit patient data to the state health department, creating a centralized database of all sickle cell disease cases in Texas. The registry must include case records and additional relevant information to aid in treatment and research, with strict confidentiality protections for patients under federal privacy laws. The department will analyze the data, publish findings for medical professionals and the public, and submit annual reports to the legislature. This affects all Texas healthcare facilities treating sickle cell disease patients and ensures patient data is securely managed for medical advancement.

Issues: ✓ Healthcare ✓ Technology

Bill status signed all 5 stages cleared

Introduction

Mar 2025

Committee Review

May 2025

House Passage

May 2025

Senate Passage

May 2025

Signed into Law

Jun 2025

Introduced Mar 14, 2025 Signed Jun 20, 2025

Maddy AI version diff · 2 comparisons

What changed between versions

Engrossed → Enrolled · 6 edits · Jun 20, 2025

MODERATE

The bill was transitioned from its 'Engrossed' version to the final 'Enrolled' version ready for signature, with significant substantive additions to the sickle cell disease registry requirements. The most important change is the addition of new provisions requiring individual consent before including information in the registry, giving individuals the right to withdraw consent, and adding a new confidentiality section that restricts how registry data can be used and disclosed. These changes strengthen privacy protections for patients while maintaining the registry's purpose for research and treatment improvement.

Scope change

The bill's scope was expanded to include explicit consent requirements and enhanced confidentiality protections that were not present in the earlier version.

REQUIREMENT

New requirement that consent from individuals or their legally authorized representatives must be obtained before any information is included in the sickle cell disease registry

New right for individuals to withdraw their consent for inclusion in the registry at any time

New requirement that state employees cannot testify about registry records without individual consent

New provision requiring the department's institutional review board to approve requests for access to information that identifies individuals in the registry

New requirement restricting use of Medicaid information in the registry to purposes directly connected with Medicaid program administration

CONFIDENTIALITY

New confidentiality section establishing that registry information is not public, not subject to public records requests, and not subject to subpoenas

Floor votes · Senate May 20, 2025 · House May 28, 2025

How they voted

24–6

Passed

Total votes 30

May 20, 2025

D Democratic10

10 Yea

100% Yea

R Republican20

14 Yea 6 Nay

70% Yea

Vote distribution

All Yea All Nay Mixed No data

Full legislative history

Actions timeline

Total actions

Key actions

Committee

Amendments

Jun 20, 2025

Signed into law

Signed by the Governor

executive

May 31, 2025

Upper · Passed

Signed in the Senate

upper

May 30, 2025

Lower · Passed

Signed in the House

lower

May 28, 2025

Introduced

House concurs in Senate amendment(s)-reported

upper

May 28, 2025

Introduced

Text of Senate Amendment(s)

lower

May 28, 2025

Introduced

House concurs in Senate amendment(s)

lower

May 28, 2025

House · Passed

House Vote: pass (94-31-21)

house

May 22, 2025

Introduced

Senate Amendments Analysis distributed

lower

May 22, 2025

Introduced

Senate Amendments distributed

lower

May 21, 2025

Lower · Passed

Senate passage as amended reported

lower

May 20, 2025

Upper · Passed

Passed

upper

May 20, 2025

Upper · Passed

Passed to 3rd reading as amended

upper

May 20, 2025

Upper · Passed

Amended

upper

May 20, 2025

Introduced

Amendment(s) offered

upper

May 19, 2025

Upper · Passed

Committee report printed and distributed

upper

May 19, 2025

Upper · Passed

Reported favorably w/o amendments

upper

May 15, 2025

Upper · Passed

Vote taken in committee

upper

May 14, 2025

Upper · Passed

Left pending in committee

upper

Apr 29, 2025

Committee

Referred to Health & Human Services

upper

Apr 29, 2025

Introduced

Read first time

upper

Apr 28, 2025

Introduced

Received from the House

upper

Apr 28, 2025

Lower · Passed

Passed

lower

Apr 25, 2025

Lower · Passed

Passed to engrossment

lower

Apr 15, 2025

Lower · Passed

Committee report sent to Calendars

lower

Apr 14, 2025

Lower · Passed

Committee report distributed

lower

Apr 7, 2025

Lower · Passed

Reported favorably w/o amendment(s)

lower

Mar 31, 2025

Lower · Passed

Left pending in committee

lower

Mar 31, 2025

Lower · Passed

Testimony taken/registration(s) recorded in committee

lower

Mar 31, 2025

Lower · Passed

Recalled from subcommittee

lower

Mar 14, 2025

Committee

Referred to s/c on Dis Prev & Women's & Children's Health by Speaker

lower

Mar 14, 2025

Introduced

Read first time

lower

6 primary · 55 co-sponsors