TennCare - As enacted, authorizes the bureau to provide coverage and treatment on behalf of an enrollee for the diagnosis, including genetic testing, and treatment of Kleefstra syndrome in the same manner and to the same extent that the bureau provides coverage for autism spectrum disorder, Trisomy 21 or Down syndrome, and other similar or related genetic disorders, when determined to be medically necessary. - Amends TCA Title 56 and Title 71.
SB 522 requires Tennessee's TennCare program to cover diagnosis (including genetic testing) and treatment for Kleefstra syndrome - a rare genetic disorder causing developmental delays, intellectual disability, and physical symptoms - on the same terms as coverage for autism spectrum disorder, Down syndrome, and similar genetic conditions. This mandate applies directly to TennCare enrollees diagnosed with Kleefstra syndrome, ensuring access to therapies, medications, and interventions aimed at improving quality of life. The bill updates TennCare coverage rules to include this condition under existing standards for comparable genetic disorders. It takes effect July 1, 2025.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
Governor
Introduced Feb 10, 2025
Last action Apr 4, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
8
Key actions
2
Committee
3
Mar 11, 2025
Upper · Passed
Recommended for passage with amendment/s, refer to Senate Calendar Committee Ayes 6, Nays 3 PNV 0
upper
Mar 5, 2025
Lower · Passed
Placed on Senate Commerce and Labor Committee calendar for 3/11/2025
lower
Feb 12, 2025
Committee
Passed on Second Consideration, refer to Senate Commerce and Labor Committee
upper
Feb 10, 2025
Introduced
Introduced, Passed on First Consideration
lower
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Kerry Roberts
RRepublican
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