HB 1179 Pennsylvania House · 2025-2026 Regular Session

An Act providing for privacy, transparency and compensation regarding the disclosure of information collected by genetic material testing entities.

HB 1179, the Genetic Materials Privacy and Compensation Act, requires genetic testing entities (including medical facilities, genealogy services, and law enforcement) to clearly disclose to individuals what genetic data they collect, how it may be used, and with which third parties it will be shared. The bill mandates "prominent disclosure" in plain language before data collection, prohibiting misleading claims about data privacy or usage. It specifically requires testing entities to obtain explicit consent before sharing genetic material with third parties. The law directly affects individuals using genetic tests and the companies providing those services, focusing on transparency rather than compensation mechanisms.
Bill status in committee 1 of 4 stages cleared
Introduction
Apr 2025
Committee Review
Floor Vote
Governor
Introduced Apr 9, 2025 Last action Apr 9, 2025