An Act providing for privacy, transparency and compensation regarding the disclosure of information collected by genetic material testing entities.
HB 1179, the Genetic Materials Privacy and Compensation Act, requires genetic testing entities (including medical facilities, genealogy services, and law enforcement) to clearly disclose to individuals what genetic data they collect, how it may be used, and with which third parties it will be shared. The bill mandates "prominent disclosure" in plain language before data collection, prohibiting misleading claims about data privacy or usage. It specifically requires testing entities to obtain explicit consent before sharing genetic material with third parties. The law directly affects individuals using genetic tests and the companies providing those services, focusing on transparency rather than compensation mechanisms.
Bill status
in committee
1 of 4 stages cleared
Introduction
Apr 2025
Committee Review
Floor Vote
Governor
Introduced Apr 9, 2025
Last action Apr 9, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
1
Key actions
0
Committee
1
Apr 9, 2025
Committee
Referred to Consumer Protection, Technology & Utilities
lower
1 primary · 19 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Emily Kinkead
DDemocratic
Co
Ben Sanchez
DDemocratic
Co
Bob Merski
DDemocratic
Co
Brian Munroe
DDemocratic
Co
Carol Hill-Evans
DDemocratic
Co
Chris Pielli
DDemocratic
Co
Chris Rabb
DDemocratic
Co
Darisha Parker
DDemocratic
Co
Joe Ciresi
DDemocratic
Co
Johanny Cepeda-Freytiz
DDemocratic
Co
Kristine Howard
DDemocratic
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