Relating to Parkinson's disease registry; prescribing an effective date.

HB 2595 establishes a statewide Parkinson’s disease registry in Oregon to track the incidence and prevalence of Parkinson’s disease and related conditions (like multiple system atrophy). Health care facilities, practitioners, and clinical laboratories diagnosing or treating these conditions must report basic case data to the Oregon Health Authority, while patients can opt out of data collection in writing. The registry requires strict confidentiality for all patient information, prohibits public disclosure without consent, and allows third-party research using anonymized data with institutional review board approval. An advisory committee - including patients, specialists, and researchers - will guide data collection and report annually to lawmakers. This bill directly affects Oregon patients with Parkinson’s disease, health care providers, and the Oregon Health Authority, focusing on data collection for public health research.