Relating to the Rare Disease Advisory Council.
Summary
Establishes the Rare Disease Advisory Council. Directs the council to biennially submit a report to the Governor and appropriate legislative committees summarizing the activities of the council and making policy recommendations.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jan 2025
Committee Review
Floor Vote
Governor
Introduced Jan 13, 2025
Last action Jun 28, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
7
Key actions
2
Committee
4
Jun 28, 2025
Lower · Passed
In committee upon adjournment.
lower
Feb 24, 2025
Committee
Referred to Ways and Means by prior reference.
lower
Feb 24, 2025
Lower · Passed
Recommendation: Do pass and be referred to Ways and Means by prior reference.
lower
Jan 17, 2025
Committee
Referred to Behavioral Health and Health Care with subsequent referral to Ways and Means.
lower
Jan 13, 2025
Introduced
First reading. Referred to Speaker's desk.
lower
1 primary · 3 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Hai Pham
DDemocratic
Co
Cyrus Javadi
DDemocratic
Co
Ed Diehl
RRepublican
Co
Emily McIntire
RRepublican
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