Public health; establishing the Oklahoma Rare Disease Advisory Council. Effective date.

SB 225 establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health to address the needs of Oklahomans with rare diseases. The council directly affects rare disease patients, caregivers, healthcare providers, and related organizations by providing guidance on policy, care access, and emergency planning. Key provisions include holding public hearings, developing recommendations for healthcare coverage and diagnostics, creating emergency care protocols, and requiring annual reports to the legislature. Membership includes 13+ diverse stakeholders like patients, physicians, insurers, biopharma representatives, and researchers, appointed by the Governor and Council chair. The council must submit annual reports detailing its work and policy recommendations to the Governor and legislature.