Public health; establishing the Oklahoma Rare Disease Advisory Council; modifying requirements relating to newborn screening program. Effective date. Emergency.
What changed between versions
Added a requirement that all Council members must be full-time residents of Oklahoma, whereas the House version did not explicitly state this.
Specified that the Council chair must be appointed by the Governor by December 1, 2025, and must not hold any government position.
Defined the specific composition of the 13 required members, including representatives from academic institutions, health authorities, insurance, nursing, medicine, hospitals, patient organizations, biopharmaceuticals, health plans, and scientific research.
Established a three-year initial term for the chair, with subsequent chairs elected by Council members every two years, and limited Council member service to a maximum of three years.
Required the Council to hold its first meeting no later than February 1, 2026, and to meet at least quarterly thereafter.