HB 1019 Oklahoma House · 2025 Regular Session

Public health; Oklahoma Rare Disease Advisory Council; purpose; appointment procedures; membership requirements; annual report; membership terms; vacancies; term; effective date.

HB 1019 establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health to address the needs of Oklahomans living with rare diseases. The Council, composed of 17 diverse members including patients, caregivers, healthcare providers, researchers, and industry representatives, will conduct public hearings, develop policy recommendations, and create emergency care protocols for rare disease patients. It must submit an annual report to the Governor, Senate President Pro Tempore, and House Speaker - after public comment - with recommendations to improve care access, diagnostics, and health equity. The Council’s first meeting is required by February 1, 2026.

Issues: ✓ Healthcare

Bill status died 1 of 4 stages cleared

Introduction

Feb 2025

Committee Review

Floor Vote

Governor

Introduced Feb 3, 2025 Last action Feb 7, 2025

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What changed between versions

Introduced → Proposed Committee Substitute (sub committee) 1 · 4 edits

MODERATE

The bill was substantially rewritten from scratch by the subcommittee, changing how council members are appointed and who serves on it. The original version required the Governor to appoint 17+ members with specific categories, while the new version splits appointments between the Governor (7 members), State Department of Health (5 members), Oklahoma Health Care Authority (2 members), Department of Mental Health (1 member), and State Regents for Higher Education (1 member). This changes who has control over council composition and may affect representation balance.

Scope change

The council's purpose and activities remain largely the same, but the membership structure and appointment authority have been significantly reorganized.

ELIGIBILITY

Council membership structure changed from 17+ members appointed by Governor to a split system: Governor appoints 7 members, State Department of Health appoints 5, Oklahoma Health Care Authority appoints 2, Department of Mental Health appoints 1, and State Regents for Higher Education appoints 1.

Specific member categories were reorganized. The original version included academic researchers, hospital administrators, pharmacists, biopharmaceutical industry reps, and mental health providers in the Governor's appointments. The new version distributes these across multiple appointing authorities.

REQUIREMENT

The bill was completely rewritten with different formatting and structure, though the core purpose of establishing the Oklahoma Rare Disease Advisory Council remains the same.

TIMELINE

The initial meeting date and appointment deadline language was modified in the rewrite, though specific dates like December 1, 2025 for chair appointment appear to remain.

Floor votes

How they voted

No floor votes recorded yet.

Full legislative history

Actions timeline

Total actions

Key actions

Committee

Feb 7, 2025

Committee

Referred to Appropriations and Budget Health Subcommittee

lower

Feb 6, 2025

Committee

Referred to Appropriations and Budget

lower

Feb 5, 2025

Committee

Referred to Rules

lower

Feb 3, 2025

Introduced

First Reading

lower

2 primary · 0 co-sponsors