S 6413 New York Senate · 2025 Regular Session

Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

Summary
Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
Bill status in committee 3 of 5 stages cleared
Introduction
Mar 2025
Committee Review
Jun 2025
Senate Passage
Jun 2025
Assembly Passage
Governor
Introduced Mar 13, 2025 Last action Jun 10, 2025
Floor votes · Senate Jun 4, 2025

How they voted

200
Passed · 1 other
Total votes 21
Jun 4, 2025
D Democratic14
13 Yea 1
92% Yea
R Republican7
7 Yea
100% Yea
Vote distribution
All Yea All Nay Mixed No data
Full legislative history

Actions timeline

Total actions
6
Key actions
1
Committee
3
Jun 4, 2025
Committee
COMMITTEE DISCHARGED AND COMMITTED TO RULES
upper
Jun 4, 2025
Senate · Passed
Senate Vote: pass (20-0-1)
senate
May 28, 2025
Committee
REPORTED AND COMMITTED TO FINANCE
upper
Mar 13, 2025
Committee
REFERRED TO HEALTH
upper
1 primary · 1 co-sponsor

Sponsors