Establishes the Sickle Cell Treatment Act
This bill establishes the "Sickle Cell Treatment Act" to improve care for sickle cell disease patients in New York. It designates five "centers for excellence" (with two north of Putnam/Orange counties) and ten outpatient treatment centers based on patient populations, providing each center with annual funding ($500,000 for excellence centers, $250,000 for outpatient centers) to support specialized care, research, and equipment. The bill also modifies opioid prescribing rules to exempt sickle cell disease patients from a three-month opioid limit, ensuring they can receive necessary pain management without restrictive barriers. These changes directly affect hospitals designated as centers, sickle cell patients requiring specialized care, and healthcare providers managing chronic pain.
Bill status
passed
3 of 5 stages cleared
Introduction
Jan 2025
Committee Review
Jun 2026
Senate Passage
Jun 2026
Assembly Passage
Governor
Introduced Jan 10, 2025
Last action Jun 1, 2026
Maddy AI version diff · 2 comparisons
What changed between versions
S1578A
→
S1578B
·
1 edit
MINOR
The bill was renamed from the 'Syd O. Sotillo Sickle Cell Treatment Act' to the 'Sickle Cell Treatment Act', removing the specific dedication to one individual. The substantive policy content regarding funding for research centers, outpatient treatment centers, and opioid prescribing exemptions for sickle cell patients remains unchanged.
Scope change
The bill's scope and applicability are unchanged; the only modification is the removal of a specific person's name from the title.
DEFINITION
The bill's short title was changed from 'Syd O. Sotillo Sickle Cell Treatment Act' to 'Sickle Cell Treatment Act'.
Floor votes · Senate May 28, 2025
How they voted
61–0
Passed · 2 other
Total votes 63
May 28, 2025
D
Democratic41
97% Yea
R
Republican22
95% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
21
Key actions
6
Committee
7
Amendments
4
Jun 1, 2026
Committee
REFERRED TO HEALTH
lower
Jun 1, 2026
Upper · Passed
PASSED SENATE
upper
May 28, 2026
Committee
COMMITTEE DISCHARGED AND COMMITTED TO RULES
upper
Feb 4, 2026
Committee
REPORTED AND COMMITTED TO FINANCE
upper
Jan 7, 2026
Committee
REFERRED TO HEALTH
upper
May 28, 2025
Committee
REFERRED TO HEALTH
lower
May 28, 2025
Upper · Passed
PASSED SENATE
upper
Mar 7, 2025
Upper · Passed
PRINT NUMBER 1578B
upper
Mar 7, 2025
Upper · Passed
AMEND AND RECOMMIT TO FINANCE
upper
Feb 4, 2025
Upper · Passed
PRINT NUMBER 1578A
upper
Feb 4, 2025
Upper · Passed
AMEND AND RECOMMIT TO FINANCE
upper
Feb 4, 2025
Committee
REPORTED AND COMMITTED TO FINANCE
upper
Jan 10, 2025
Committee
REFERRED TO HEALTH
upper
1 primary · 16 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
James Sanders
DDemocratic
Co
Cordell Cleare
DDemocratic
Co
Jake Ashby
RRepublican/Conservative
Co
Jessica Ramos
DDemocratic/Working Families
Co
Jessica Scarcella-Spanton
DDemocratic
Co
Kevin Parker
DDemocratic/Working Families
Co
Lea Webb
DDemocratic/Working Families
Co
Leroy Comrie
DDemocratic
Co
Liz Krueger
DDemocratic/Working Families
Co
Luis Sepúlveda
DDemocratic
Co
Mike Gianaris
DDemocratic/Working Families
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