Establishes the rare disease advisory council
Summary
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Bill status
passed both
4 of 5 stages cleared
Introduction
Jan 2025
Committee Review
Feb 2026
Senate Passage
Feb 2026
Assembly Passage
Mar 2026
Governor
Introduced Jan 9, 2025
Last action Mar 10, 2026
Maddy AI version diff · 2 comparisons
What changed between versions
S1287A
→
S1287B
·
4 edits
MODERATE
The bill was amended to add five new appointees to the Rare Disease Advisory Council, increasing the total membership from fifteen to seventeen. Two new members will be appointed by the Assembly minority leader and the Senate minority leader, expanding representation beyond the original sponsors and leadership. This change ensures broader political representation and potentially more diverse perspectives on rare disease policy.
Scope change
The scope of the bill was expanded by increasing the council membership size and adding new appointing authorities, which may affect the council's composition and decision-making dynamics.
REQUIREMENT
Increased council membership from fifteen to seventeen members
Added one member appointment by the Assembly minority leader
Added one member appointment by the Senate minority leader
ELIGIBILITY
Updated bill sponsors to include additional senators (ADDABBO, ASHBY, CLEARE, COMRIE, COONEY, FERNANDEZ, GALLIVAN, MARTINS, MAY, WEBB)
Floor votes · Senate Mar 19, 2025 · Assembly Mar 10, 2026
How they voted
60–0
Passed · 3 other
Total votes 63
Mar 19, 2025
D
Democratic41
92% Yea
R
Republican22
100% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
26
Key actions
7
Committee
4
Amendments
4
Mar 10, 2026
Lower · Passed
PASSED ASSEMBLY
lower
Feb 10, 2026
Committee
REFERRED TO WAYS AND MEANS
lower
Feb 10, 2026
Upper · Passed
PASSED SENATE
upper
Jan 8, 2026
Upper · Passed
PRINT NUMBER 1287B
upper
Jan 8, 2026
Upper · Passed
AMEND AND RECOMMIT TO HEALTH
upper
Jan 7, 2026
Committee
REFERRED TO HEALTH
upper
Mar 19, 2025
Committee
REFERRED TO WAYS AND MEANS
lower
Mar 19, 2025
Upper · Passed
PASSED SENATE
upper
Jan 30, 2025
Upper · Passed
PRINT NUMBER 1287A
upper
Jan 30, 2025
Upper · Passed
AMEND AND RECOMMIT TO HEALTH
upper
Jan 9, 2025
Committee
REFERRED TO HEALTH
upper
1 primary · 14 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Roxanne Persaud
DDemocratic
Co
Brad Hoylman-Sigal
DDemocratic/Working Families
Co
Cordell Cleare
DDemocratic
Co
Dean Murray
RRepublican/Conservative
Co
Gustavo Rivera
DDemocratic/Working Families
Co
Jack Martins
RRepublican/Conservative
Co
Jake Ashby
RRepublican/Conservative
Co
Jeremy Cooney
DDemocratic/Working Families
Co
Joe Addabbo
DDemocratic
Co
Lea Webb
DDemocratic/Working Families
Co
Leroy Comrie
DDemocratic
Ask Maddy
·
AI policy assistant
Ask Maddy about S 1287
Scope: NY
Hi! I can help you understand S 1287. What would you like to know?
Try one of these
i
Maddy answers using official bill text and legislative records. Always verify before sharing.
Sources cited inline