Memorializing Governor Kathy Hochul to proclaim October 25-31, 2025, as Epidermolysis Bullosa Awareness Week in the State of New York, more commonly known as Butterfly Children Awareness Week

This resolution requests Governor Hochul to officially designate October 25-31, 2025, as Epidermolysis Bullosa (EB) Awareness Week in New York State, commonly called "Butterfly Children Awareness Week." It directly affects individuals with EB, a rare genetic skin disorder causing extreme fragility, blistering, and chronic pain, impacting approximately 200 children annually in New York. The resolution aims to raise public and medical awareness about EB, its severe complications, and the challenges families face with wound care and limited treatment options. As a symbolic resolution (not a law), it has no direct policy changes but seeks to foster greater recognition and support for EB patients and their families.