Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry
Summary
Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
Bill status
signed
all 5 stages cleared
Introduction
Apr 2025
Committee Review
Jun 2025
Assembly Passage
Jun 2025
Senate Passage
Jun 2025
Signed into Law
Oct 2025
Introduced Apr 11, 2025
Signed Oct 17, 2025
Floor votes · Senate Jun 10, 2025 · Assembly Jun 6, 2025
How they voted
58–0
Passed · 5 other
Total votes 63
Jun 10, 2025
D
Democratic41
90% Yea
R
Republican22
95% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
16
Key actions
3
Committee
5
Oct 17, 2025
Signed into law
SIGNED CHAP.478
lower
Jun 10, 2025
Upper · Passed
PASSED SENATE
upper
Jun 6, 2025
Committee
REFERRED TO RULES
upper
Jun 6, 2025
Lower · Passed
PASSED ASSEMBLY
lower
May 29, 2025
Committee
REPORTED REFERRED TO RULES
lower
May 28, 2025
Committee
REPORTED REFERRED TO WAYS AND MEANS
lower
May 19, 2025
Committee
REPORTED REFERRED TO CODES
lower
Apr 11, 2025
Committee
REFERRED TO HEALTH
lower
1 primary · 6 co-sponsors
Sponsors
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