Establishes a demonstration program for pediatric palliative care centers
Summary
Enacts the "pediatric palliative care center act" to establish a demonstration program for pediatric palliative care centers for up to five not-for-profits to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age; authorizes the establishment or approval of a rate methodology.
Bill status
in committee
1 of 4 stages cleared
Introduction
Mar 2026
Committee Review
Floor Vote
Governor
Introduced Mar 13, 2026
Last action Jun 4, 2026
Maddy AI version diff · 1 comparison
What changed between versions
A10569
→
A10569A
·
5 edits
MODERATE
The bill was amended to shift from establishing permanent pediatric palliative care homes to creating a temporary demonstration program for pediatric palliative care centers. This change limits the initiative to a pilot phase involving up to five non-profit entities, introduces specific eligibility criteria for patients and centers, and sets a mandatory expiration date for the program.
Scope change
The bill's scope changed from a permanent legislative category for residential care facilities to a time-limited demonstration program with strict limits on the number of participating entities and a defined expiration timeline.
SCOPE
Changed the bill's purpose from establishing permanent pediatric palliative care homes to creating a temporary demonstration program.
ELIGIBILITY
Added specific eligibility criteria requiring centers to meet medical necessity, functional impairment, and caregiver need standards.
TIMELINE
Added a sunset clause requiring the act to expire and be repealed eight years after its effective date.
REQUIREMENT
Added requirements that demonstration centers be limited in size based on local need and that the commissioner verify the character and competence of participating entities.
FISCAL
Modified the rate methodology section to be based on reasonable costs of operating a demonstration center rather than enhanced rates for permanent facilities.
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
2
Committee
1
Amendments
2
Jun 4, 2026
Lower · Passed
PRINT NUMBER 10569A
lower
Jun 4, 2026
Lower · Passed
AMEND (T) AND RECOMMIT TO HEALTH
lower
Mar 13, 2026
Committee
REFERRED TO HEALTH
lower
1 primary · 13 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Amy Paulin
DDemocratic
Co
Jarett Gandolfo
RRepublican/Conservative/Independence
Co
Jo Anne Simon
DDemocratic
Co
Jodi Giglio
RRepublican/Conservative
Co
John McDonald
DDemocratic
Co
Josh Jensen
RRepublican/Conservative/Independence
Co
Judy Griffin
DDemocratic
Co
Karines Reyes
DDemocratic
Co
Manny De Los Santos
DDemocratic
Co
Michael Durso
RRepublican/Conservative/Independence/Libertarian
Co
Mike Fitzpatrick
RRepublican
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