A 5501 New Jersey General Assembly · 2026-2027 Regular Session

Establishes "Tom's Friends with ALS Bill of Rights" Act.

New Jersey Assembly Bill 5501 establishes a specific set of rights for patients with amyotrophic lateral sclerosis (ALS) and other motor neuron diseases to ensure they receive equitable care and comfort. The legislation guarantees access to in-home hygiene services, such as barbering and nail care, and allows therapists to provide services in the home without needing additional licensure. It also removes the requirement for insurance companies to grant prior authorization for durable medical equipment and liquid medications for these patients. Furthermore, the bill mandates that the Department of Health create annual training programs for healthcare providers, including emergency room physicians, on the changing needs of individuals with these conditions.
Bill status in committee 1 of 4 stages cleared
Introduction
Sep 2026
Committee Review
Floor Vote
Governor
Introduced Sep 14, 2026 Last action Sep 14, 2026
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Sep 14, 2026
General Assembly · Introduced
Introduced, Referred to Assembly Health Committee
1 primary · 0 co-sponsors

Sponsors

Role
Legislator
Party
State
District
P
Photo of Carol Murphy
Carol Murphy
DDemocratic
NJ
7