A 1701 New Jersey General Assembly · 2026-2027 Regular Session

Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.

This New Jersey bill establishes a central registry for newborns diagnosed with sickle cell trait (carrying one sickle cell gene, not the full disease) and requires health officials to notify parents about genetic counseling. It mandates that doctors inform parents about the risk of passing the trait to future children and the need for follow-up care. Parents will receive targeted notifications during early adolescence (regarding sports safety risks) and later adolescence (regarding reproductive planning), with similar outreach for patients turning 18. All registry information remains confidential, with penalties for unauthorized disclosure, including fines or imprisonment.
Bill status in committee 1 of 4 stages cleared
Introduction
Jan 2026
Committee Review
Floor Vote
Governor
Introduced Jan 13, 2026 Last action Jan 13, 2026
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Jan 13, 2026
Introduced
Introduced, Referred to Assembly Health Committee
lower
1 primary · 6 co-sponsors

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