Designates last day of February of each year as "Rare Disease Awareness Day" in New Jersey.
SJR 74 designates the last day of February each year as "Rare Disease Awareness Day" in New Jersey. This symbolic resolution directly affects New Jersey residents living with rare diseases (nearly 1 in 10 Americans, including about 3 million in NJ) and their families, who often face challenges like delayed diagnoses and limited treatment access. The key mechanism requires the Governor to issue an annual proclamation encouraging public awareness activities and support for these communities. It does not create new programs or change existing laws, but aligns NJ with the National Organization for Rare Disorders' nationwide observance of Rare Disease Day. The resolution aims to reduce isolation for affected individuals and promote further research into rare diseases.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2024
Committee Review
Floor Vote
Governor
Introduced Feb 8, 2024
Last action Feb 8, 2024
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Full legislative history
Actions timeline
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1
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0
Committee
0
Feb 8, 2024
Introduced
Introduced in the Senate, Referred to Senate Health, Human Services and Senior Citizens Committee
upper
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Tony Bucco
RRepublican
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