S 2516 New Jersey Senate · 2024-2025 Regular Session

Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.

This bill (S 2516) establishes a central registry for newborns diagnosed with sickle cell trait in New Jersey. It requires labs performing newborn screenings to notify physicians and document diagnoses in the registry, and mandates physicians to provide parents with information about genetic counseling. The registry will track diagnoses to help provide follow-up services, including age-specific notifications: once in early adolescence (for athletic safety), once in later adolescence (for reproductive health), and when patients turn 18. All registry information is confidential, with penalties for unauthorized disclosure, and is used solely for statistical purposes and to connect families with counseling and educational resources. The bill directly affects newborns diagnosed with sickle cell trait, their parents, and healthcare providers involved in newborn screening.
Bill status in committee 1 of 4 stages cleared
Introduction
Feb 2024
Committee Review
Floor Vote
Governor
Introduced Feb 5, 2024 Last action Feb 5, 2024
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Feb 5, 2024
Introduced
Introduced in the Senate, Referred to Senate Health, Human Services and Senior Citizens Committee
upper
1 primary · 0 co-sponsors

Sponsors

Role
Legislator
Party
State
District
P
Photo of Shirley Turner
Shirley Turner
DDemocratic
NJ
15