A 1809 New Jersey General Assembly · 2024-2025 Regular Session

Establishes central registry for sickle cell trait diagnoses; provides for informational outreach and genetic counseling.

This bill establishes a central registry for newborns diagnosed with sickle cell trait in New Jersey, requiring laboratories to report positive screening results to the registry and notify the child's physician. Physicians must then provide parents with information about genetic counseling, including risks of passing the trait to future children and potential health complications. The registry will enable the Department of Health to send targeted follow-up notifications to parents during early adolescence (about athletic risks) and later adolescence (about reproductive implications), and to 18-year-olds about available resources. All registry data is kept confidential, with strict penalties for unauthorized disclosure, including fines or up to six months in jail per violation.
Bill status in committee 1 of 4 stages cleared
Introduction
Jan 2024
Committee Review
Floor Vote
Governor
Introduced Jan 9, 2024 Last action Jan 9, 2024
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Jan 9, 2024
Introduced
Introduced in the Assembly, Referred to Assembly Health Committee
lower
1 primary · 6 co-sponsors

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