Establish the Montana rare disease advisory council
Montana's LC 4182 establishes a 17-member Rare Disease Advisory Council within the Department of Public Health and Human Services. The council includes diverse members representing patients, caregivers, healthcare providers (like physicians and geneticists), researchers, pharmaceutical companies, insurers, and state agencies to address rare disease challenges. Its key duties include holding public hearings, developing policy recommendations for better diagnosis and treatment access, publishing resources online, and identifying research gaps. The council will report annually to the department and legislature, aiming to improve care coordination for Montanans affected by rare diseases (defined as conditions impacting fewer than 200,000 people nationally). The bill creates this permanent advisory body without mandating new state-funded programs.
Bill status
introduced
1 of 4 stages cleared
Introduction
Dec 2024
Committee Review
Floor Vote
Governor
Introduced Dec 24, 2024
Last action Mar 30, 2025
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Full legislative history
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Total actions
9
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0
Committee
0
0 primary · 0 co-sponsors
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