Creates provisions relating to individualized care plans for children with rare or medically complex conditions

HB 2513 requires healthcare providers to create and maintain written, physician-approved individualized care plans for children under 18 with rare or medically complex conditions (defined as conditions affecting fewer than 200,000 people nationally or requiring specialized management). The bill mandates annual reviews of these plans, updates after hospitalizations, and specific emergency care instructions within the plan. It requires hospitals and emergency services to report significant protocol deviations (any change from the care plan causing or risking harm) to the child’s primary specialist within 24 hours. The law also establishes training for healthcare professionals on adhering to these care plans and encourages a centralized registry of plans for authorized access. The provisions become effective March 1, 2027.